I have Tourette Syndrome...and I want to learn more about it. I also want to spread awareness of this often misrepresented condition. I have obsessively watched documentaries, youtube videos, read blogs, books...and no TS experience is the same or like mine, because it is different for everyone. So I guess I am going to use this very self indulgent blog to explore TS... my TS, and hope that I educate people along the way. Like any disability or condition most people find it hard to describe what they experience or *tic* one box when it comes to explaining it. It's a beautiful spectrum of colour and uniqueness.
To keep myself in check and so that I don’t babble on about all sorts of nonsense, I am going to have 3 key themes:
- Information and awareness:- When I started searching on the internet about TS pre to my diagnosis, I didn’t find a lot of information that related to my version! I want to add into the mix of what is out there on the world wide web and talk about TS not just in a clinical way, but on a personal level. To even look at the unseen elements of TS as well as the very known elements of TS, this will therefore, (in an ideal world) start to break down the stereotypes that are out there.
- A personal reflection and journey:- This is a space for me to talk about my journey...and hope that it might shed light for others on Tourettes' Syndrome, for people with or without the condition.
- For people with Tourettes or for people undiagnosed:- This can be a place for us to communicate and share our experiences, we can all learn from each other right!
If you have any questions or queries at any point, please don't hesitate to get in touch clairbeckett@hotmail.co.uk
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Or you can comment below!
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