Skip to main content

Rebellious Sounds Archive of Women’s Activism



I have been asked to take part in the Rebellious Sounds Archive of Women’s Activism, where I will document my story to be part of the first community archive collection of oral histories about the activism of women in the South West. I am going to be recorded in a couple of weeks time and I would love to know about other peoples experience of diagnosis of Tourette Syndrome within adulthood.  My focus for my story is going to be around the confusion of the condition and how often adults with TS are misdiagnosed because of G.Ps lack of experience and knowledge of the condition.   I feel that one of the most common misconceptions is that TS is only seen in childhood, and that it disappears in adulthood.  This can lead to many adults finding diagnosis a lot later on in life, and a real lack of support that comes with it.
If you have TS and were diagnosed as an adult I would love to hear from you.  I have 6 key questions that I would like to ask you:
  1. Your age when diagnosed?
  2. How long it took to be diagnosed?
  3. What kind of support you had?
  4. What treatment you were prescribed?
  5. Did you feel like your G.P had a good understanding of TS?
  6. Did you get your diagnosis on the NHS or privately?
Please feel free to comment below, contact me via FB messenger or via email clairbeckett@hotmail.co.uk.
Thank you for your time!

Comments

Post a Comment

Popular posts from this blog

Brewing in the Basement

As I sat and sipped my coffee in a trendy London cafe, I reflected on an incredible night of Theatre hosted by Jess Thom the Tourettes Hero. If you don't know Jess Thom, she is a super hero.   She is a super hero with Tourette Syndrome, she is is one of my idols. (Check out the link for more on Jess and her adventures:  https://www.touretteshero.com/) Here in this moment I felt a real sense of contentment as I pondered what I was going to bring back to Plymouth from this amazingly positive experience at the Pit Party. I felt inspired and wished all events and theatre shows were like this.  My brother and I went to the London Barbican Centre to attend the Touretteshero Pit Party- Brewing in the Basement. This hands down, was the best theatre experience I have ever had.  I was beyond excited to the point where I completely let go with my TS and I felt 100% welcome, accepted and 'normal'.  The whole evening was BSL interpreted, there was a resting plac
Post a Comment
Read more

Tic Files

I have Tourette Syndrome...and I want to learn more about it. I also want to spread awareness of this often misrepresented condition.  I have obsessively watched documentaries, youtube videos, read blogs, books...and no TS experience is the same or like mine, because it is different for everyone.  So I guess I am going to use this very self indulgent blog to explore TS... my TS, and hope that I educate people along the way. Like any disability or condition most people find it hard to describe what they experience or *tic* one box when it comes to explaining it. It's a beautiful spectrum of colour and uniqueness. To keep myself in check and so that I don’t babble on about all sorts of nonsense, I am going to have 3 key themes: Information and awareness: - When I started searching on the internet about TS pre to my diagnosis,  I didn’t find a lot of information that related to my version!  I want to add into the mix of what is out there on the world wide web and
Post a Comment
Read more

Hidden Voices- Grace and Eczema

This is the third interview of my blog series 'Hidden Voices.' Hidden Voices shines a spotlight on talented local people based in and around Plymouth (and Cornwall for this interview!) This blog gives a platform for those who wish to talk about an element of their life that they keep secret or hide from society. The more I speak out about TS the more I gain understanding of it. When I speak to people or write about it,  I feel like I can be comfortable with with it, I get to know it. I can also see parallels between different conditions and the experiences can be so similar. Speaking loud and proud about my condition has given me opportunities to connect to a diverse community of people and it has given me a whole new perspective to the work I create.  Since posting and vlogging I have had a fair amount of people come to me saying that it has inspired them to ‘come out’ about something they might have been hiding. This is the inspiration behind this blog series.
Post a Comment
Read more